TIGblogs - Rebecca Lohman

"Let the World Know"
Report of a Seminar on Human Rights and Disability
Almåsa Conference Centre (Stockholm, November 5-9, 2000)
Published by the Office of the Special Rapporteur on Disability
of the United Nations Commission for Social Development © 2001
e-mail: un-spec.rapp@telia.com
TABLE OF CONTENTS
Preface and Acknowledgements *

I Introduction *

II Background to the Seminar *

III Timing of the Seminar: An Opportune Moment *

IV Purpose of the International Seminar: From Rhetoric to Reality *

V Organization of the Seminar *

VI General Directions for Mainstreaming the Human Right of Persons with Disabilities *

VII Developing an Overall Structure for Reporting Violations of the Human Rights of Persons with Disabilities *

VIII Understanding What Amounts to an Infringement of Human Rights *

IX Building a System for Dealing with Infringements of Human Rights *

X Making it work: Developing Instruments for Documenting Infringements of Human Rights: The Five Working Groups Report *

Documenting Individual Cases *
Documenting Legal Cases/Jurisprudence *
Documenting the Media *
Documenting legislation *
Documenting Programmes, Services and Practices *
XI. Additional General Recommendations to Strengthen the Use of International Instruments on Human Rights of Persons with Disabilities

XII Concluding Remarks: From little acorns great oaks grow *

ANNEX A: List of Participants (including observers, and support staff)

Annex A:
List of Participants (including observers and support staff)
Participants List
Adalsteinsson, Ragnar, Iceland

Attorney at law, chairman of the Icelandic Human Rights Centre
Klapparstigur 25-27, 101 Reyjkavik, Iceland
Phone: 354 511 1206, Fax: 354 511 1207
e-mail: ragnar @ adalsteinsson.is

Aleksandrova, Lyubka, Bulgaria

Teacher, Regional Society for Support of People with Mental Handicaps, branch of Bulgarian Association of People with Intellectual Handicaps
Bulgaria, 3700 Vidin, Sadebna palata, et. 4, st. 53, P.O. Box 118, Information Centre of the Open Society Foundation and the American University in Bulgaria
Phone: 359 94 41913, fax: 359 94 37159
e-mail: osaub_vd @ medianet.bg, lubka @ medianet.bg

Bach-Jensen, Karl, Denmark

Consultant dealing with social development issues and teaching, co-chair of the Danish Association of Users and Ex-users of Psychiatry, LAP (home-page: www.lap.dk)
Langelinie 7, DK 6000 Kolding, Denmark
Phone: +45 7550 2696 or +45 2342 7243
e-mail: karl @ lap.dk

Byrnes, Andrew, Hong Kong

Associate Professor and Director at the Centre for Comparative and Public Law, Faculty of Law, University of Hong Kong
Pokfulam Road, Hong Kong, China
Phone: 852 285 92 942, fax: 852-255 93 543
e-mail: abyrnes @ hkusua.hku.hk

Carlsson, Barbro, Sweden

Former secretary-general of SHIA
Åsögatan 77, 6th floor, S-118 29 Stockholm, Sweden
Phone: 46-8 669 1557
e-mail: barbro.cn @ telia.com

Fefoame, Gertrud, Ghana

Special educationist, vice-chair at the women´s wing of the Ghana Association of the Blind, vice chair of the World Blind Union Committee on the status of blind women, and member of her District Parliament in Ghana.
Ghana Association of the Blind, P.O. Box AC-496, Accra, Ghana
Phone: 233-21-22 09 04, fax: 233-21-233 442
e-mail gab @ africaonline.com.gh,

Frieden, Lex, Rehabilitation International – USA

President Rehabilitation International, senior vice president TIRR – The Institute for Rehabilitation and Research, Professor, Baylor College of Medicine
TIRR, 1333 Moursund, Houston, Texas 77030
Phone: 1-713 797 5283, fax: 1-713 799 7095
e-mail: lfrieden @ bcm.tmc.edu

Ito, Akiko, United Nations (New York)

Social Affairs Officer, programme on disability,
Division for Social Policy and Development
United Nations
2 United Nations Plaza, New York 100 17, NY (USA)
Phone: 1-212 963 1996, fax: 1-212 963 3062
e-mail: ito @ un.org
Homepage: www.un.org/esa/socdev/enable

Kabbara, Nawaf, Lebanon

President of Arab Organization of Disabled People. President of the Human Rights Committee of the SocioEconomic Council in Lebanon. Professor of Political Science in Balamand University, Lebanon.
P.O. Box 113-5157 Hamra, Beirut, Lebanon
Phone/fax: 961 1 738296/7
e-mail: nawafk @ cyberia.net.lb

Kallehauge, Holger, Denmark

High Court Judge, president of the Danish Society of Polio and Accident Victims (PTU)
Fjeldhammervej 8, 2610 Rodovre, Denmark
Phone: 45-36 73 90 00, fax: 45-36 73 90 01
e-mail: ptu @ ptu.dk

Kauppinen, Liisa, World Federation of the Deaf, Finland

President World Federation of the Deaf
P.O. Box 65, SF-00401 Helsinki, Finland
Phone: 358 9 58031, fax: 358 9 580 3770
e-mail: wfd @ kl-deaf.fi

Lachwitz, Klaus, Germany

Past secretary-general of Inclusion International, coordinator of Inclusion International´s task force on human rights, managing director of Lebenshilfe Germany; department of laws, social policy and ethical questions
Bundesverinigung für Menschen mit geistigen Behinderung
Raiffeissenstrasse 18, D-35043 Marburg, Germany
Phone: 49-6421491159, fax: 49-6421491213
e-mail: Recht @ Lebenshilfe.de

Leal Ocampo, Roberto, Nicaragua

Director General, Padre de Familia, Inclusion Interamericana, Secretary-General of Confederacion Centroamericana y Caribe de Padres (Concapad),
P.O. Box J-127, Managua, Nicaragua
Phone: 505 265 1810, fax: 505 265 1694
e-mail: rleal @ nicarao.org.ni

Light, Richard, United Kingdom

Lawyer and director of research at Disability Awareness in Action
Disability Awareness in Action (DAA), 11 Belgrave Road,
London SW1V 1RB, United Kingdom
Phone: 44-20 7834 0477, fax: 44-20 7821 9539, minicom: 44 20 7821 9812
e-mail: research @ daa.org.uk

Lindqvist, Bengt, UN Special Rapporteur on Disability, Sweden

P.O. Box 16363, S-103 26 Stockholm, Sweden
Phone: 46-8 453 4022, fax: 46-8 24 88 47
e-mail: un-spec.rapp @ telia.com

Lööw, Lars, Sweden

Lawyer, national disability ombudsman
Handikappombudsmannen, P.O. Box 8009, 104 20 Stockholm, Sweden
Phone: 46-8 20 17 70, fax: 46-8 20 43 53
e-mail: info @ handikappombudsmannen.se

Mac Aodha, Eamonn, Permanent Mission of Ireland, Geneva, Switzerland

Diplomat, responsible for human rights issues at the Permanent Mission of Ireland to the United Nations in Geneva
Rue de Moillebeau, 58, 1211 Geneva 19, Switzerland
Phone: 41-22 9191950, fax: 41-22 9191951/2
e-mail: eamonn.macaodha @ iveagh.irlgov.ie

Malinga, Joshua, Disabled People´s International, Zimbabwe

Chairperson International Disability Alliance, DPI chairperson
P.O. Box 2213, Bulawayo, Zimbabwe
Phone: 263-9 66764/65392/74133, mobile: 11704104,
fax: 263-9 66764/68023/74398
e-mail: pafod @ telconet.co.zw

Mohit, Anuradha, India

Deputy chief commissioner (for persons with disabilities) at government of India.
e-mail: nabdelhi @ del2.vsnl.net.in

Mukasa, Florence Nightingale, Uganda

Sign Language Coordinator, Uganda National Association of the Deaf
Chairperson of Deaf Women Association (Uganda), treasurer of National Union of women with disabilities of Uganda
P.O. Box 7339, Kampala, Uganda, Fax: 256-041 272 563

Nkeli, Jerry, South Africa

Attorney, national commissioner for disability
South African Human Rights Commission,
Private Bag 2700, Houghton, JOHANNESBURG, 2041
Phone: (011) 484 8300, fax :(011) 484 8403
E-mail: jnkeli @ jhb.sahrc.org.za, smserv @ mweb.co.za

Nordström, Kicki, World Blind Union, Sweden

President World Blind Union
c/o SRF, S-122 88 Enskede, Sweden
Phone: 46-8 39 92 55, fax: 46-8 725 99 20
e-mail: kino @ iris.se

O´Hagan, Mary, World Network of Users and Survivors of Psychiatry, New Zealand

Mental health commissioner in New Zealand, founder and committe member of the World Network of Users and Survivors of Psychiatry
Mental Health Commission, P.O. Box 12479, Thorndon,
Wellington, New Zealand
Phone: 64-4 474 8900, fax: 64-4 474 8901
e-mail: mohagan @ ihug.co.nz

Rioux, Marcia, Canada

Rapporteur of International Seminar on Human Rights and Disability, research associate Robarts Centre for Policy Studies, York University, advisor on disability policy to the Victoria Government, Australia, co-chair of the National Resource Centre for Inclusive Project, Mumbai, India
York University, 4700 Keele Street, Toronto, Ontario M3J 1P3
Phone: +-416 736 5499, fax: 1-416 929 3539
e-mail: mrioux @ interlog.com

Rosenthal, Eric, United States

Founder and executive director of Mental Disability Rights International (MDRI)
MDRI, 1156 15th St. NW, Suite 1001, Washington, D.C. 20005
Phone: 1-202 296 6550, fax: 1-202 728 3053
e-mail: Eric.rosenthal @ erols.com

Tebourbi, Myriam, United Nations, Geneva

Human Rights Officer – In charge of the issue of disability in the office of the High Commissioner for Human Rights
Palais Wilson, Geneva, Switzerland,
UNOG-OHCHR, CH-1211 Geneva 10
Phone: 41-22 917 93 30, fax: 41-22 917 90 10
e-mail: mtebourbi.hchr @ unog.ch

Wahlström, Victor, Inclusion International

Past President of Inclusion International, UN and human rights coordinator – Inclusion International
Tantogatan 67, S-118 42 Stockholm, Sweden
Phone: 46-8 84 51 06, fax: 46-8 84 42 33
e-mail: victor.wahlstrom @ swipnet.se

Observers
Aquiline, Carol-lee, Secretary-General, World Federation of the Deaf

P.O. Box 65, 00401 Helsinki, Finland
Phone: 358-9 580 31, fax: 358-9 580 3576
e-mail: Carol-lee.Aquiline @ wfdnews.org

Burdekin, Brian, special advisor to the High Commissioner for Human Rights

Palais Wilson, Geneva, Switzerland,
UNOG-OHCHR, CH-1211 Geneva 10
Phone: 41-22 917 91 26, fax: 41-22 917 90 21
e-mail: bburdekin.hchr @ unog.ch

Ekman-Aldén, Malin, Secretary-General, SHIA

P.O. Box 4060, S-102 61 Stockholm, Sweden
Phone: 46-8 462 33 60, fax: 46-8 714 5922
e-mail: shia @ shia.se

Granström, Mette, officer in charge, Swedish Committe for Rehabilitation (SVCR)

P.O. Box 510, S-162 15 Vällingby, Sweden
Phone: 46-8 620 17 00, fax: 46-8 739 21 52
e-mail: mette.granstrom @ hi.se

Gussing, Nils, consultant International Disability Foundation

P.O. 3337, CH-1211, Geneve 3, Switzerland
Phone: 41-22 793 9393, fax: 41-22 793 3939
e-mail: gussing @ gussing.ch

Jokinen, Markku, World Federation of the Deaf, Finland

President of the Finnish Association of the Deaf, Vice President of the European Union of the Deaf, Project Coordinator, University of Jyväskylä,
e-mail: markku.jokinen @ kl-deaf.fi, majokine @ edu.jyu.fi

Parker, Susan, board member, International Disability Foundation

Senior adviser in rehabilitation at ILO, Geneva.
120, rte de Ferney, 1202 Geneva, Switzerland
Phone/fax: 41-22 733 7183
e-mail: sparkerski @ aol.com

Seminar secretariat
Berg, Susanne, Sweden

Frödén, Anne, Sweden

Ohlsson, Erica, Sweden

Staaf, Erik. Sweden

Åkerberg, Annica, Sweden

Personal assistants, interpreters, and support staff
Abou Khalil, Jahda (assistant – Kabbara)

Brodie, Malcolm, (assistant - Frieden)

Malinga, Ronia (assistant - Malinga)

Marjanen, Kati (sign language interpreter – Liisa Kauppinen)

Nantongo, Prossy Suubi (interpreter – Florence Mukasa, Uganda)

Nordquist, Kaj (translation service)

Ruuskanen, Sirpa (sign language interpreter – Liisa Kauppinen)

Sagström, Eva (office of the UN Special Rapporteur)

Sigander, Noemi (assistant – Susanne Berg)